Friday, September 18, 2009

Ben is Having Another Surgery

Some of you might have heard some slight mention of this possibility, but unfortunately Ben is having another surgery. The first surgery went as planned, but the bone grew back and fused again, much quicker than what was expected. We knew there was a very slight chance of his needing another surgery. We had sought second, third, and fourth opinions on Ben's condition, and have decided to travel to Baltimore, MD to Johns Hopkins Hospital for Ben's surgery. They are one of the top pediatric neurosurgery teams in the US, and we feel good with our decision to travel so far for Ben's treatment. Most of the teams in the midwest had not performed a second operation of this kind on an infant under the age of one.

Our pre-op appointment is on September 30th, and the surgery date is scheduled for October 7th. We will be in Baltimore from September 29th through October 14th.

During the week between the pre-op appointment and the surgery, we plan on seeing Washington D.C. (40 miles west of Baltimore) for a few days. It will be our first family "vacation" - granted under less than ideal circumstances, but we might as well make the best of it. We will also have to return to Baltimore more over the coming year. I will be sure to let everyone know how things go and anything else I find out between now and then. Thank you all for your love and support.


  1. Lara,
    This is a great pic of Ben! I'm so sorry to hear the news of another surgery, but I'll be praying for a wonderful recovery and tremendous success. He did so great after surgery #1, I'm sure he'll be a little trooper again. Although, I know that doesn't ease the mommy worry. Take care and be sure to let us know how he is.

  2. We feel just awful for you, but if it means a normal life for Ben, I'm sure that you feel like this is your only choice, and I applaud you for the tough decisions you have had to make. God bless and we'll be thinking of you.

  3. Ben is such a cutie pie! (Have I said that before? :)) I will pray for complete and total success with Ben's surgery. I have no doubt he will be in the best hands at JH. Yes, and why not see D.C. too? That should help with the stress level somewhat. Good decision. Will be thinking of Ben and you also. -Tammy