When I look back to what Ben looked like before, I remember that baby, but I can't believe I never realized how different he looked from most babies. Today I picked up photos from Sears that I had taken a week prior to surgery. I wanted to remember how he looked before, but then kind of forgot about actually going back to Sears and getting the pictures.
Recently I have posted about how I am concerned that his head isn't better than it is. After looking at these pictures, I can more easily acknowledge that we have come a long way. I have written a few surgeons in other hospitals over the past couple of days, sharing these before and after pictures and asking for further opinions. Although we have made great progress, I am still hoping for more improvement. Particularly on the back of his head. From the top view, it is quite narrow too. It's hard to tell from the pictures alone, but looking at my adorable bowling-ball headed nephew that is about the same age, you can really see the differences.
My concern is with Ben being able to wear a bike helmet, play t-ball, or do anything else that he would like to do that involves a regular helmet. There is also the cosmetic factor, and I am just not sure how "normal" his head will look as a teenager, if he doesn't have any further change to his head shape. I also remind myself that we are so fortunate his condition hasn't negatively affected any facial features, only the top and back of his head.
I will be sure to post as I receive opinions from other doctors. We are still waiting to see what happens, and our next appointment is in October. It just seems like such a long wait to find out what will happen next.
The picture at the top of this post is from a week prior to surgery. Below are recent after pictures. For more before pictures, go to this post and scroll down to the bottom of the page.